Community's help needed to save newborn with rare neurological d - KUAM.com-KUAM News: On Air. Online. On Demand.

Community's help needed to save newborn with rare neurological disorders

Posted: Sep 06, 2018 2:59 PM +10:00 Updated:
Courtesy: Jennfier Cruz Lizama on Facebook Courtesy: Jennfier Cruz Lizama on Facebook

Born in the Philippines with rare neurological disorders, a local family shares the story of Baby Zaion, asking for the community's help to bring the newborn home. In his hospital room in the Philippines, baby Zaion turned two months old this week.

"He's so precious," said Jennifer Cruz Lizama, his mother. "He's very active when he's awake he has so much attitude. We are reaching out to anybody and everybody for their support and most especially their prayers for Baby Zaion."  Holding her baby with tears in her eyes, Jennifer shared the story of her son, who at only 6 days old went through his first surgery.

 
User: Jennifer To: link

Doctors inserted a shunt to help remove excess fluid in his brain. She said, "He's a dandy-walker warrior, he has also hydrocephalus, schizencephaly is a slit of the brain so Zaion only has his left side of his brain."

Suffering from a multitude of rare neurological disorders, Jennifer and her husband took indefinite leave to be by Zaion's side, as he endures treatment off-island. The journey emotionally taxing, now taking a toll financially. "Unfortunately, with Zaion's surgery he's maxed out with his insurance and the second surgery is pretty much pay out of pocket - it's really difficult because we have no income our family back home and stateside they're doing their very best to support us," Jennifer continued.

With a heavy heart and hope, the family is reaching out to their community on Guam for help, praying that Baby Zaion will meet his family waiting back home. "Any donation will make a difference for Baby Zaion, giving him a chance at life, to live a normal life, and the chance to go back home and finally meet his siblings," she said.

A fundraiser for Baby Zaion will be held on Guam this Saturday, September 8th at Bellies Lounge in East Agana from 6pm to 10pm. The family staying strong, as Baby Zaion recovers from his second surgery.

If you are interested in donating directly to the family, you can find a link at Jennifer Cruz Lizama's page on Facebook.

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