Family needs help with newborn's medical treatment - KUAM.com-KUAM News: On Air. Online. On Demand.

Family needs help with newborn's medical treatment

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 A local family is seeking the community's help in trying to save their 4-day-old son, who is fighting for his life. It is a fear that all expectant mothers must endure to carry a child for nine months, have a normal delivery and seemingly healthy child then out of nowhere there is a turn for the worst.   

This is the reality that Beverly Encarnacion and Justin Abadilla have gone through when their son Julien, born healthy only days ago, has developed complications. They discovered fluid in his lungs, difficulty breathing and a heart murmur. After tests were conducted it was discovered Baby Julien has a rare heart disease;  "Hypoplastic left heart syndrome," Beverly explained. "And what does that mean? It means that your heart has four valves and he has one so the surgery so that they separate the valves."

To make matters worse, there are no current medical options on island to treat the disease. His parents were given two options. "Pretty much it was get operated and send him to the Philippines or California or they said heart transplant and the last one was palliative care, which is you let go of your loved one as as painlessly for the loved one," said Justin.

The last option was out of the question. But with no health insurance and the possibility of not qualifying for Medicaid, his parents have turned to the community for help in saving their baby's heart. "Medivac alone is $180+, depending on the availability of the doctors," Beverly explained. "The surgery they are saying that we need three surgeries one that needs to be done now and the other three to six months down the road...surgeries are going to come up to maybe a million."

But time is not on their side and they must pay in full for the Medivac before they can leave. Encarnacion says that her son is a fighter and he is getting better but doctors have told them that they must get the surgery done within a couple of weeks.

To donate to their cause and help save Baby Julien visit www.gofundme.com/q5894aa. Any amount will help. 

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